Surrogacy Myths: Protecting the body beautiful

Some surrogacy myths fly in the face of logic. One of these myths is that women who choose surrogacy do so because they want to protect their beautiful bodies. They are concerned with stretch marks, getting ‘fat’, and other visible signs of pregnancy.

While this may be a concept for the incredibly rare case of a select few celebrities, overwhelmingly the reason even celebrities choose surrogacy is because of medical or social reasons and NOT to avoid pregnancy.

Elizabeth Banks used a surrogate after embryos failed to implant in her womb

http://www.ivillage.com/celebs-who-used-surrogate/6-b-140197#491540

Overwhelmingly, all the women we speak to (and even the same sex couples!) say that if they had a choice, they would carry their own pregnancy and have their own child.

Carrying your own child is the ideal situation. Surrogacy is a last resort option, a decision that is costly even when it is 100% altruistic as it is in Australia. If there is any other way to safely have a child, the intended parents would gladly choose it.

For many of us, our bodies represent the ultimate in betrayal. We have battled cancer, heart disease, blood clots, or were born without a functional uterus. So to say we are protecting our body for beauty is ridiculous. As a group, we are littered with scars from operations which we have survived. We wear our scars with pride and would be more than happy to wear our pregnancy stretch marks with a greater sense of pride.

At Medicareless, we believe stretch marks are beautiful!

Unfortunately, some of us will never have the pleasure of knowing how it feels to carry our own children.

For those of us doing surrogacy, it simply isn’t possible to carry a child safely. So please think of us when you next hear this surrogacy myth.

If you think that Medicare laws in Australia should be equal for all, including those accessing surrogacy, please download and sign our petition for change and send it back before June 5.

“Why don’t you just adopt?” – Questions asked of surrogacy patients

So often on the path to surrogacy, well-meaning people ask “Why don’t you just adopt?” This question, while well intentioned, shows a certain naivety about the process of adoption including the incredible challenges, costs and complexity.

Medicareless interviewed Arielle, a mother from surrogacy, who first looked into adoption carefully before going down the surrogacy path. Here is her story.

BUBS!

Arielle’s beautiful sons from surrogacy in India

What medical reason do you have for needing to look into adoption or surrogacy?

We started to try to fall pregnant in 2005 and expected the ‘happy accident’ to occur naturally. The years passed and we realised something was wrong so we saw a fertility specialist who announced that we were ‘infertile’ simply because after a year of trying, at my age (32), we should have been pregnant already.

Did you try to fall pregnant yourself? What happened?

We started the IVF journey not longer after this bombshell was dropped on us. And then we tried and tried again for the next 6 years. We were never given a reason for it not working, I just simply couldn’t get past the 2 week mark after each transfer. And with every attempt came the devastating realisation that we were not successful and that with time ticking away things would only get harder. I suffered so much pain and grief during this time. So much soul-destroying confusion and despondence. People kept telling me to be positive and keep trying. And somehow, after each round of IVF and the grief that followed, I always got back on the horse and tried again. Physically, psychologically, spiritually – I was crushed. Adoption was always in the back of my mind as a road we’d go down when the time was right, but as you are not ‘allowed’ to be undergoing IVF when applying for adoption, I needed to wait until I was ready to stop trying to have my own baby. This is in itself was a huge step to take – to let go of falling pregnant, experiencing motherhood in the ‘normal’ way, and seeing a child grow up that came from within me and looked like me.

When did you first think of looking at adopting?

It certainly wasn’t when people – who knew our pain – would flippantly remark “Why don’t you JUST adopt”! This started happening in the first year of our IVF journey and it was simply insulting. Even after 6 years of IVF I wasn’t quite ready to look into adoption. I still had some hope of carrying our child and -not even realising just how hard it would be -adoption still felt like a very hard ‘other’ road to travel.

What was it that attracted you to adoption?

After all that we’d been through in the better part of the last decade, we decided that adoption would be a better option than putting ourselves through more tortuous rounds of IVF. I thought logically that if we followed the steps given to us to adopt, did the courses, reading, interviews etc we’d end up with a child or children within a few years and finally have the family we yearned for. We also felt that it would be a wonderful thing to bring a needy child or sibling group into a loving family. We had so much love to give and so many years of parenting that had been preparing for – we felt so ready to adopt after 7 years of failing to start a family the natural or IVF way.

Describe the adoption process.

We first had to wait for the introductory seminars to proceed. That was the first chapter of waiting. So we decided – ok let’s adopt! And then found out it was 4 months until the first seminar was to be held. We waited patiently. We attended the seminar with open eyes, ears and hearts and met many other hopeful ‘intending parents’. The coordinators were very empathetic but warned us that the adoption route could be extremely challenging and that only a small percentage of people would get to the finish line, mainly because of the time and commitment it took to go through the process. We did not yet have an inkling that the challenges would mostly be due to the small number of children that are placed in Australian families (from overseas). We were advised to choose overseas adoption as Australian children are mostly fostered into known families. And we were only able to select one country to adopt from. We were told that this country may change it’s relationship with Australia at any point and close the adoption program. So to keep reading up on current laws and changes in case it affected our chosen country’s program.

We then proceeded with the interview process. This went on for a year and cost over $10K. We would rush out from work to meet with the social worker who would investigate everything about us and our lives and intentions for the adopted child. We were told to be prepared to move house, learn a new language, attend picnics with other adoption families, travel to and from the child’s country of origin and blend aspects of their culture with ours. We had to be prepared to be open with the child about their origins when the time was right. We understood why they asked of us these commitments…and we were more than willing to compromise in every way we could if it meant we could have a child of our own.

We also had to learn about an excruciating check-list of ailments, ‘defects’ and historical matters (such as incest, addiction, abuse) to let the program managers know that we were prepared to live an adopted child that could have any number of debilitating illnesses, deformities or social impairments. We were told that the less boxes ticked the less chance we’d have of being matched with a child, so we ticked them all.

Around that time we also had to give up notions of adopting a baby. At our age (38 by then) our best chances lay in putting our names down for older children (4+) who were more likely to have had a background of abuse or neglect. So we ticked away, hoping for a small miracle,  and hoping that we’d be matched with a relatively healthy, and if possible, happy child. Unfortunately, we knew the chances of this were very slight. Still, we forged ahead, knowing that we would cope with no matter what or who came our way. We were by that point simply desperate to hold and love a child as our own.

So when did you start looking into surrogacy?
We were towards the end of the adoption interview process which had taken about a year and was already very costly both financially and in terms of time. Friends we’d met through the adoption seminars had already been to an Indian Surrogacy Clinic (that I’d also seen featured on the ABC’s Insight program earlier in the year, when surrogacy was still a strange concept that ‘other people’ did but certainly not us!) and within a couple of months after returning home – they had announced they were pregnant with their surrogate. I had been to India 12 year’s prior on a soul searching adventure and had a great affinity with the country and people. And although we were still a little freaked out by the concept of surrogacy, we began to normalise it via the hundreds of questions we asked of our friends plus some online forums and groups I joined. As the adoption interviews neared the end we found out that our country of choice had a wait list of about 1-2 years to GET ON the actual wait list for child placements (being only 10 or so placements per year from this country!) And THEN the long 3-6+ year would begin. Not only that, but we were advised to keep checking online for changes in the country’s adoption program as it could close or change at any time and that could impact us immediately. This could mean starting over with another country/program and certainly after a few years with our getting into our mid-40s we’d have to reapply anyway. So given these parameters, at the best of situations, we would be around 45 by the time we had waited the 6 or so years to adopt.

Adoption was, in a nutshell, a host of uncertainty and painstaking waiting whilst enduring daily pangs of childless grief, while we watched our friends come home with a baby via surrogacy. We began to think about hopping on a plane to India and giving surrogacy a go – our final throw of the dice (as it’s been called recently in a Radio National story!)

As we waited for our social worker to go to the loo during our final adoption interview – just before she announced that we were (in the eyes of DOCS) deemed ‘fit’ to be parents’ (!!) – we looked at one another and said “Are you thinking what I’m thinking?” – and with a nod and smile we both just said the hushed word INDIA. Within months we were there…the lead up to going was so hectic – juggling work, surrogacy research, finances (the surrogacy was only possible by digging deep into our mortgage savings), visa applications, checking out legal implications and always managing our heavy hearts. At this point and after so much failure we didn’t seriously think surrogacy would work for us. We just needed to tick the box in order to tell ourselves that we’d tried EVERYTHING to achieve our dream to start a family.

On the way to India we decided that this was really it – one trip, one try and then a new journey: hit 40 and create a new enriching life without children. How we’d do that was still a mystery to me, but I knew that I didn’t have any puff left in me after this final – and at the time strange and scary – attempt at starting our family.

How did surrogacy work out for you?

Potty!! 042

Finally, we have the family we’ve always dreamed of and feel especially lucky to have been blessed with twin boys Leo and Noah who are now 6.5 months and thriving. We feel proud of ourselves for having undertaken the surrogacy route especially with all the strangeness and fears that it presented to us. In the end, we realise that by taking matters into our own hands this way and taking a few risks fulfilled on our dream to have a family in a much shorter time than adoption would have. Much as we would have loved to embrace a child from another country with our love and create a family this way, the Australian programs just make it seem so out of reach and near impossible to succeed. Surrogacy didn’t give us any guarantees as an option but it did work for us. We’ll forever be grateful for our surrogate and everyone involved who helped us to make this happen.

What would you say to people that say “Just adopt” or “Why don’t you just adopt”

Do some reading! And don’t think that a grieving mother or father-in-waiting is prepared or even able to give up on having their own child so easily. I would say to those with children – imagine if someone took your children away. How would you feel? Would you ‘just adopt’? As this is what it felt like to me – that someone robbed us of having our own children. Adoption was always going to be an option, but the spiritual crisis presented by not being able to have your own child is never going to be repaired by the concept of adopting.

Trewy’s Surrogacy Story

In response to our media story on Channel 9 News Tuesday, 9th April, we received words of encouragement from Trewy and his wife, an ordinary couple facing the difficulty of a surrogacy without Medicare. Trewy decided to share his story for us below.

“After, marrying my wife Rach in October 2010. We discovered Rach has fertility problems.

Fertility problems in Australia are not rare with 1 in 8 couples needing treatment. However, Rach has a more rare and costly medical condition which prevents her body from producing eggs. No eggs, is a not a big problem. If you have a family friend you could be lucky. If you wait for donor eggs in Australia, it will take about 5 to 6 years according to the doctors.

[Moderator note – http://www.eggdonationaustralia.com.au is an excellent not for profit site dedicated to egg donation in Australia and recipients can find donors within a few months, so for those needing an egg donor, don’t lose hope and don’t believe the doctors!]

Rach and I have been lucky to find an egg donor and harvest three eggs at a cost of $12500. This was a straight out-of-pocket expense and not covered by our private health or anything. It’s worth noting that in Australia, no money is allowed to be paid to an egg donor.

I thought having three 3day old embryos (3 potential children), our hurdles and dramas would be over. Sadly, it was just the beginning. After months of drugs and money being used to try and get Rach ready to have an embryo transferred,  we have only managed to kill one of our potential children, kill my equity in our beautiful home, beat up our credit card and become ever so saddened by our grim outcome.

See the IVF train is a slow and expensive train. Suddenly, your life goes from a newly married couple to counting down days till the next cycle of drugs, and loads and loads of tests with more and more delays.

Financial stress plus emotional stress can start to beat you up. I would be lying if I said “I have never considered divorce’’. I would even give up my house, even body swap with a terminally ill person, if only I could have a son who could catch a ball with me. A son to share his first beer. Sadly, if I bear no children, then there will be no grandchildren either. All I can look forward to is a lonely retirement.

This is where you can help. IVF is a kind of high risk investment. Except IVF investment is a rule breaker as it is investment with emotion. I don’t want to be father of the year, just a father.

This year we are switching from IVF to surrogacy. Sadly, life makes Rach a poor microwave. Rach has found a surrogate. A person, who will not receive money for their priceless gift, to us. Sadly, the costs of surrogacy are about $60000 to $80000. This is lawyer costs to create the legal surrogacy agreement (2 lawyers $15000 each). The costs of counseling, insurance to be able to obtain a parentage order under the surrogacy agreement. Then all the medical costs that are not covered by Medicare or our useless private health which follows the laws set out by Medicare.

Morally, I feel obliged to continue with this course of action, because those two embryos are technically alive and just frozen. Even after this process we may not have a child. I’m sure the cost would double if we are lucky to use both embryos.

I have begged the banks for a low interest loan, and even contacted my superannuation to help cover the $60000 for surrogacy. I have not been very successful. So, goodbye dream home and boat. Sadly, the dream of having a family is killing my dream of financial security. However, you never know…..I could win lotto.

How can two tax paying government employees with private health cover and a small mortgage be forgotten? We’ve never received a government handout, and we’ve paid all of our HECs debts. We have been described by our friends as the ‘unlucky couple in the lucky country’.

How can you help? I have no idea. Bring attention to this situation, government assistance, I remember former Prime Minister Kevin Rudd, giving a speech containing the word family. Family first and family this. Well, after I’ve written letters to Labor, Liberal governments both state and Federal, I’m sad to say that no replies have been received.

If I do make it through this nightmare. I really wanted to take the egg donor, surrogate and wife –  hopefully with a child or children-  on a holiday. To thank them for their commitment to my family. However, with the cost of things coming, I may have to wait a while. A long while. Perhaps a lifetime.

Thank you for taking the time to read my story.

Trewy”

Of course, we know how you can help people like Trewy. Sign our petition for change, and send an email to Tanya Plibersek and other members for parliament. Choose from any of our ready- made email formats from the Resources tab.

Together, we can make this change, and help ordinary working couples become families. As you know we are starting to receive replies and are receiving media attention, so as a group we are making an impact – where before we were solo travelers, losing hope on our own voyages. Too many have been silent for too long!

Response from Department of Health & Ageing

Today we received a promising response from the Department of Health and Ageing.

Firstly they “commended” us for the work we are doing to create awareness about the Medicare laws as they relate to surrogacy.

Secondly they reiterated that they are committed to medically necessary services to the public and are therefore actively considering the issues raised in the surrogacy paper. They have advised that I am welcome to contact them to see how this work is progressing and provided the contact Ms Mary Warner, Director of Medical Services.

I am so proud of this response and hope that they are sincere in their response.

Please continue the great work you are all doing in creating awareness about this issue, great joint effort.

Letter from Dept Health & Aging

Tracy’s Story

Let me just start this by saying that in no way does my story compare to the heartache that others in this blog have been through. My husband and I have been blessed with a gorgeous little boy. However, the current Medicare legislations are certainly putting an extra hurdle in the way of completing our family.

Tracy with her husband John and precious son Oliver

Tracy with her husband John and precious son Oliver

John and I met and married within a year and a half. We were in our early thirties and just knew it was right. We both had stable jobs, I was a primary school teacher and John was an engineer. We had the car, the house, the Labrador. The next thing to conquer was the kids! We were so excited to start a family together and hoped to have three children. I come from a small family and John’s family are all in Ireland so it was our plan to bring back the noisy house and big Christmases that I’d dreamed of. We fell pregnant very quickly. At our 10 week scan, we found that the heartbeat had stopped. We were devastated. But four months later, we found that we were pregnant again. I was anxious, but as the weeks rolled on I got more and more confident that this pregnancy was going to work. I was healthy throughout and we got busy preparing for our new addition. Oliver was born after a drug free natural labour on the 5th of November 2012. As the doctor placed him on my chest, I began to feel strange. I don’t remember much after that… Apparently, my uterus inverted causing a severe post partum haemorrhage. I required 13 units of blood in a transfusion and my blood pressure was so low that they were expecting brain damage or cardiac arrest! The only way to save my life was an emergency hysterectomy. My poor husband saw all this unfold and had to give the consent to perform the operation, something he’ll never come to terms with.

I remember waking up in the ICU after being on life support for a couple of days. I was so relieved to hear that my son was fine but was absolutely heartbroken to hear that I would not be able to carry any more children. I just sobbed and sobbed and sobbed. I had never felt emotional pain like that before.

Tracy's wishes she could give her son Oliver a sibling

Tracy’s wishes she could give her son Oliver a sibling

Anyway, fast forward almost 4 months and I love being a mummy. I’m on maternity leave and enjoying every minute of it. Physically I have healed, however, I’m not ready to give up the dream of more children. I’ve looked into adoption and permanent care, however, there are so few children to be placed that our chances aren’t high. During my research I have found that finding a gestational carrier can happen to everyday families like us! At this stage, I’m unsure if this will occur in Australia or overseas. This is completely dependent on whether I can find a carrier here or not, but either way, I will be doing my IVF cycle on home soil. We have discussed the priorities for our family and have decided that another child is more important to us than a new car or material possessions. We will be using all of our savings to fund this and we are just hoping that the bank will allow us to take out another loan to cover the rest. If it doesn’t work the first time, I don’t think a second time will be an option. A child is our priority but if we can’t get more money, there is nothing we can do. I already feel ‘ripped off’ that I had to have a hysterectomy, but being charged extra for IVF services is like kicking us when we are down. All I can do is to hope that our actions here will persuade the powers that be to change the Medicare ruling and give us the chance to complete our family.

Jillian’s long two weeks ahead

Wow it’s here already. Today I start my injections for my first IVF cycle.

I’m not really sure how I am feeling – maybe anxious, nervous and even a bit pressured. Not pressured to go through with the cycle –  I would do it ten times if I could!  Pressured because I know I must succeed with this precious cycle. Without Medicare benefits this may well be my only chance.
Many women going through their first cycle are aware of the slim success rate and already start planning a second attempt. For me (and many of you following our blog) a second cycle would be what dreams are made of! Its like winning the lottery!

Unfortunately, we just can’t afford it as is.
In fact, when looking at the statistics, and my chance for success, I almost went straight from thinking about doing my own IVF cycle with my own genetic (but potentially not young enough) eggs, to the “safer financial idea” of a donor IVF cycle, where a younger woman would donate her eggs so we could have a family. I was justifying this idea in my head as “better value for money”.

What was I thinking?

How could I even start thinking that way? My desperation for a child was turning into a financial decision!!! It was only when my mother in law said to me “you don’t want to be left wondering ‘what if…’ ” and she is right. What if? What if my eggs work? I have to find out.
This should be the most exciting two weeks of my life. Many babies are created in a night a passion with those we love the most. But for us the process is far more complicated. For some of us the medication tends to make us somewhat “moody” and for others it’s a breeze. The stress causes arguments in our lives often with our partners who tread on egg shells (pun intended) as they support us over the two weeks it takes to do the stimulation to collect the eggs. Never-the-less, I know our love will withstand these pressures. We made it this far –  there’s no turning back!!!
I have my fingers crossed! Two weeks seems forever, but its going to be positive thinking all the way!!!
To all the amazing people following our blog and supporting our fight –  I thank you. Your support is wonderful.

Are you crazy? Why are you doing this in Australia and not overseas?

So often amongst our community of people accessing surrogacy, we (the women doing altruistic Australian surrogacy) are asked ‘Why do you bother trying to do it here in Australia?’ and ‘Don’t you find it all too hard?’
The truth is, the Australian system really IS making it too hard for couples. Clearly we are in agreement that the law should protect the interests of the child as paramount, and we understand that is the objective of the laws. Yet what in practice is happening is that altruistic surrogacy in Australia is so unclear and challenging – that a money making industry has popped up to ‘assist’ women such as us.

IVF Clinics

Those people that ‘assist’ us are most often lawyers and IVF clinics. The IVF clinics, as you know from this blog, charge an incredible amount of money per attempt of IVF. Between 12 and 18,000 per cycle, with no access to Medicare.

Every clinic has a different approach to the cycle. Some of them will insist on absolutely crazy and detrimental protocols, like egg quarantining. Yes, a clinic can request you to quarantine your donor eggs even though eggs on their own DO NOT work in about 85% or more of cases. Who cares? The IVF clinics are not paid on your successful outcome. So it makes no difference to them if your outcome is successful or not.

Some clinics will have a good process in place to support surrogacy but still insist on a 6 month quarantine of embryos. So after years of struggling, you find you have to wait 6 months before you can even start. This is incredibly frustrating.

Ethics Committees

Then there are the ethics committees. The doctors that have to certify that you are truly eligible for surrogacy. I must say that being certified as infertile is not a pleasant experience. Conversely, I don’t know of too many women that would willingly give up being pregnant either, or who, by choice, would like for someone else to carry their baby. To nourish it and grow it for them. Generally speaking, this is quite a personal task, and one that people like to do themselves, so I don’t quite understand why there is an assumption that women would rush to do surrogacy unless they absolutely had to. Some of us wonder if we will ‘fail’ the ethics committee as we haven’t ‘failed’ enough times in our IVF attempts. It is deeply distressing and the guidelines are not clear, which only makes it more messy.

Then comes our favorite topic –

IVF and Medicare.

Kate, from the blog Our Surrogacy sums it up perfectly.

” A refusal of support to assist something so positive for no real reason other than that I can’t carry the baby myself (was like rubbing salt into the wound).  I have had a hysterectomy under hugely traumatic circumstances.  Otherwise I am a healthy, active, young person desperate to complete our family.  why should I have to pay triple or more what other people would pay for the exact same treatment simply because those other people are infertile in a different way?

When I started to look into it further I discovered that some clinics do give medicare rebates to people who have had a hysterectomy – what??!!   Even amongst the clinics and IVF world here in Australia there is inconsistency.

Kate on her wedding day

Technically I ought to have been entitled to medicare rebates as at the time I had no surrogacy arrangement in place and I could have had a cycle and frozen the embryos to either send overseas or use for surrogacy here later on.  When I called Medicare they agreed that technically, you should only not be entitled to the rebate where a surrogacy arrangement was in place.  But my clinic would not budge.  I would be up for $12,000 minimum for one cycle; no rebate.  I can’t blame them, they were doing things by the book and didn’t want to get into trouble.  But the injustice that other clinics would turn a blind eye and bill the cycle in a different way seemed too much on top of the basic injustice that medicare won’t cover surrogacy.

In comparison, me, my husband and son can all fly to India, stay for almost 3 weeks and get a full IVF cycle with transfer to surrogate for less than that.  Yes we will have the fee to the surrogate and other costs on top of that but so would there be additional costs doing it here.  So, rather than stay here, give business to the IVF clinics here, and perhaps be safer, unfortunately I feel as though my whole family is being forced overseas to pursue something that could have been achieved here had the rules, regulations and costs been a little more user-friendly and accessible.” Read more of her blog here.

Lawyers

To do altruistic surrogacy in Australia, you need to complete a pre-surrogacy contract and then apply for a parenting order post surrogacy. When I first started looking into surrogacy, I met some wonderfully kind lawyers. They seemed so nice. However, I have since found that they spend time making a connection with you as they want to charge around $15,000 – $20,000 for the process. That’s right. They seem so nice and lovely, but by any estimation, that is a lot of money. And if you worked that out on hours….well let’s examine this idea together?

If a top rated lawyer were to charge  $450 an hour then it would be 33 to 44 hours of work. These lawyers are family lawyers. Our local family lawyer charges $250 per hour. So, by that standard we would be looking at even more hours of work. Is this realistic? Honest? When the pre-surrogacy contract is not legally enforceable? When it’s largely a cut and paste of a template that they already have on-hand…can they possibly find themselves doing a week’s worth of work on this project? I have since found lawyers that will charge the reasonable rate of about $750 to $900 for a pre surrogacy arrangement and $5,000 for a post surrogacy arrangement. But I had to really look hard for them because the industry cogs are well in place.

As one lawyer laughingly (but not jokingly, there is a major difference) said to us recently, “$60,000, (his estimated cost of altruistic surrogacy in Australia) Well, anybody can get their hands on that nowdays!” I guess at that rate of pay, it would be a correct statement.

Does this make Australian Surrogacy truly altruistic?

My feeling is that altruistic surrogacy is altruistic for only one person – the lovely lady that offers to carry the baby for you. It seems strange that the woman doing the most vital of all jobs is always the one called on to be the most accountable in terms of financial gain, erstwhile a huge industry cogs its wheels around her, making money at every step. She cannot be given a holiday post birth to celebrate a job well done. She can’t be given more than $10,000 in expenses over the 9 months she is pregnant, including lost wages, or a red flag goes up. So how can a lawyer ask for 15 to 20 thousand? And an IVF clinic 12 to 18,000?

With the confusion and the grey-ness of the law, with the industry that preys on people that need surrogacy in Australia we can see why many opt to go overseas where the laws are clearer and the expenses are laid out clearly and contractually.

We have made a choice. And we want to change the system.

We choose to do altruistic surrogacy in Australia because it’s what is right for us, but we understand why those who opt for overseas options think we are a little crazy. However, maybe we are just the right kind of crazy to get these laws changed enough to make the system fairer for all? To make the system clearer and more honest? We choose to start with the Medicare law, as it’s the most obvious one that needs changing.

Changing the law to make it fairer is worth being a bit crazy about!